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The different actors of the Network interact at the European level for the most part with the ECFS (European Cystic Fibrosis Society) through:

  • participation in the clinical research network, ECFS-Clinical Trial Network (CTN) set up in 2008 for which the centers of seven interregional networks in France were selected through a call for proposals
  • the CF Europe federation of patient associations
  • participation of the French registry in the European registry (ECFS Patient Registry)
  • participation in working groups on the publication of European care standards
  • regular connections maintained by the French Cystic Fibrosis Association with its German, British, and Belgian equivalents.

In practice

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Filière MUCO-CFTR - Hôpital Femme – Mère – Enfant - 59 Boulevard Pinel

69677 Bron Cedex - FRANCE - Tél : 04 27 85 62 57