The different actors of the Network interact at the European level for the most part with the ECFS (European Cystic Fibrosis Society) through:
- participation in the clinical research network, ECFS-Clinical Trial Network (CTN) set up in 2008 for which the centers of seven interregional networks in France were selected through a call for proposals
- the CF Europe federation of patient associations
- participation of the French registry in the European registry (ECFS Patient Registry)
- participation in working groups on the publication of European care standards
- regular connections maintained by the French Cystic Fibrosis Association with its German, British, and Belgian equivalents.