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The field of expertise of the Cystic Fibrosis-CFTR Network covers cystic fibrosis and all of the disorders related to a CFTR (cystic fibrosis transmembrane conductance regulator) protein abnormality not considered within the typical forms of cystic fibrosis (CFTR-related disorders and CFTR Metabolic Syndrome).

The network comprises a number of actors: rare disease reference centers (centre de référence maladie rare, CRMR), cystic fibrosis resource and skills centers (centres de ressources et de compétences de la mucoviscidose, CRCM), laboratories, etc. For further information on its organization, missions, and action plan,  the Cystic Fibrosis-CFTR network explains everything.

If you are a healthcare professional or researcher, you may be interested in the education page (with a presentation on the cystic fibrosis days: scientific days and French-language days), therapy education, research, and documentation.

You can download the Cystic Fibrosis-CFTR Network in PDF format.

In practice

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Filière MUCO-CFTR - Hôpital Femme – Mère – Enfant - 59 Boulevard Pinel

69677 Bron Cedex - FRANCE - Tél : 04 27 85 62 57